Parkinson's Disease Registry- A Long-Term Study
The purpose of the registry is to develop a national database
for persons with Parkinson's disease. It will be used to facilitate
the development of new therapies and healthcare services in order
to improve the quality of life for people with PD. The registry will
also be a means for investigators in the field of PD to quickly identify
and notify people about research studies for which they are eligible.
- To accelerate the process of informing participants of research projects for which they may be eligible
- To track the functional abilities and cost of illness for people with PD over time
- To assist the Parkinson's disease medical community with the development of recommendations for monitoring their patients and reports on patient outcomes to optimize patient care
- To assess characteristics of PD
and treatment patterns.
- Participation in the registry is voluntary, confidential and free of charge.
- You will be notified of clinical trials for which you may be eligible; however you are not obligated to enter the trials.
- You will be asked to complete an updated questionnaire every six months.
- You may also be asked to complete additional surveys for PD research projects.
- The data you provide will be used in scientific publications, in summary form only.
- Your name will not be released to any individuals outside the Registry management team without your written authorization, nor will it be sold for advertising or fund raising. We have taken all possible precautions to protect your personal information. The transmission of your answers to MAPC from your browser is secured with 128 bit encryption, the same level of security that is used by banks.
Any individual who has been diagnosed with PD is eligible
to enroll.
Go to the Registry Enrollment 
